Again thanks for your prayers. This is still a bit surreal. Getting all kinds of medical advice from people who are not doctors or even medical assistants (nobody here, thank God), which I thank them for and pretty much let go- I'm not going to play roullett with my son's life and health. BS is still BS even when its well-intentioned.
Will keep y'all posted on things. ALl y'all are in my prayers as well.
Keep us posted Tanasi, I hope your son gets better. I know this is a hard time for your family (and really, I can't imagine how much you've gone through already) but you are a strong woman, and you will get through this inshallah.